My Intro…

Alopecia Areata in a Town Near You!

Yes it’s true!  AND now I’m one of you in my Home Town!…. AND..across the world! 

 I didn’t think it was possible but now I am one of the MANY-(4.7 million+)Americans who are victims of this autoimmune disease that is attacking my hair even as we speak. 

 So now  it has come to this reaction with me speaking out on the subject, and thus creating : OMGMYHAIR.COM  

OK,OK..I know what some of you are thinking..BUT….Before any of you get your undies in a bunch,let me explain that site’s name! 

Growing up as a P.K.(layman’s terms–Pastor’s Kid) hey,I didn’t make that term up…. 

My  2 an 1/2 year old granddaughter discovered my ( small?) shiny quarter sized patch of Alopecia Areata,while she was playing beauty school with my hair  in June of 2010. I was soooo Embarassed and ran for the nearest mirror. My first cry out was..O my God my hair! (OMGMYHAIR)

 Why is this happening to me?…Autoimmune disease??? I know someone who died from an autoimmune disease…. Am I dying???  I have a disease? Can others get it from me? 

AND so on went my rantings,crying and angerment sessions about my hair loss!  

I suffered the full range of emotions that come over you when your confronted with something thats new,scary and unknown in your life. 

You just want it to go away,or run away from it:to be in total denial! 

But how do you run away from your hair? 

After all it’s suppose to be there for you,right on top of your head! OR IS IT? 

Well…follow me on my Alopecia Areata journey,for the next stop on the tour is the next logical step,my visit with my general practioner,my primary doctor. 

Maybe I’ll get some answers there?

Grab some coffee,your phone,some paper and pens…plan to stick around a bit for my NEXT BIG adventures,because it gets alot worse on my Journey!

P.S.Go to my Q&A About Alopecia page to learn factual details about Alopecia Areata:AND some websites to look at pictures of what “Alopecians” are dealing with! KNOWLEDGE IS POWER! (as they say)

HUGS,MJ 

   Face,Head shot of the 3 Stages of Alopecia Areata,Totalis,Universalis;Auto-Immune Disease

 

10 Comments

  • billie mesa says:

    We are looking for a group of children/adults with alopecia in Albuquerque, NM. Can you help?

  • zac says:

    You know what. I have also the same case as yours. and I pity mself the very first time I discovered the disease called ALOPECIA! but now I am doing well as I also have gained a lesson about what happened to me. I hope you are doing great this time. i wish .. :( )

  • Chris Roman says:

    Hey Margie, thank you for sharing your journey, your laughs, your tears, and hopefully your joy with us. I’ll look to you to be my teacher in learning and understanding this disease.

  • Wish2BInvisible says:

    It takes courage and the strength to share your story. Thank you; I wish I had some of that! I was 2-1/2 when my mom noticed the first patch of hair loss. That was in 1973. I’m now 40 and have Alopecia Universalis. Alopecia owns me physically, mentally, and financially…but not spiritually.

  • pam himes-ohler says:

    I am very much liking your website! Touching and uplifting all at the same time. I look forward to hearing more of your journey.

  • pam himes-ohler says:

    I am very much liking your website! Touching and uplifting all at the same time. I look forward to hearing more of your journey.

  • Jim McClelland Sr. says:

    Its just mee Margie–> Came to walk with you hand in hand down your lifes path.
    I of late feel like my path is like the “Charge of the Light brigade” Half a league, half a league, half a league forward all in the valley of death rode the six hundred. FORWARD! THE LIGHT BRIGADE! Charge for the guns! he said, into the valley of death rode the six hundred. Cannon to the right of them, Cannon to the left of them, Cannon in front of them vollyed and thunder’d. Came threw the jaws of death and back from the mouth of hell. this is a cut up version of the poem-you get the general idea ( i hope) But it is a tough ride we are makiing dear friend Margie. But be it known, we are not alone. Jim

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